Quick Question January 2023 Results: Where Does/Did the FTD-diagnosed Person Live?
More than two-thirds (67%) of those answering our January 2023 Quick Question indicated that their FTD-diagnosed loved one lives or lived in a house, apartment, or another type of private residence.
Several people (35) wrote in their answers. The majority of these (51%) indicated that their FTD loved one had died, but did not provide information about where they lived before they passed. A couple of respondents listed several locations the FTD-diagnosed person lived as the disease progressed prior to passing away including home, assisted living, nursing home for dementia, and hospice.
Two people indicated that their loved one lives/lived in a Veterans Health Administration (VA) hospital. Other write-in responses noted various specialty care centers the person with FTD lives/lived:
- An adult family home
- A small group home
- A dementia care community similar to Alzheimer’s but with more hands-on services
- A dementia care center for young clients with FTD
- A locked memory care center
- A neurological care center
- A Parkinson’s specialty care center
People from 21 countries around the world gave their input in this month’s poll. Spouses (46%) and biological family members (37%) represented the greatest number of those who replied. Persons diagnosed with FTD made up 14%.
Where does/did the FTD-diagnosed person live?
- House/Apartment/Private residence, 67% (648)
- Dementia long-term care, 10% (93)
- General long-term care, 7% (71)
- Dementia assisted living, 7% (63)
- General assisted living, 4% (39)
- Hospice care, 1% (13)
- Write-in responses, 4% (35)
Write-in responses by topic:
- FTD-diagnosed is deceased, 51% (18)
- Specialty care center, 20% (7)
- Multiple locations, 6% (2)
- VA hospital, 6% (2)
- Other, 17% (6)
Relationship to the FTD-diagnosed person:
- A spouse, 46% (442)
- A biological family member, 37% (359)
- An FTD-diagnosed person, 14% (133)
- A caregiver 2% (19)
- A friend, 0.5% (4)
- Blank/Prefer not to answer, 0.5% (5)
You can access questions and responses from last year on the Quick Questions 2022 webpage.