PRESS & NEWS
Quick Question June 2022: Have you tried to get genetic testing for FTD over the last 3 years?
RESULTS The following charts and lists are based on 852 submissions. Question results: 48% No, I have not tried to get genetic testing 6% No, I do not want genetic testing 4% No, I was tested more than 3 years ago 10% Yes, I was tested by one of my physicians 3% Yes, I was…
RESULTS
The following charts and lists are based on 852 submissions.
Question results:
- 48% No, I have not tried to get genetic testing
- 6% No, I do not want genetic testing
- 4% No, I was tested more than 3 years ago
- 10% Yes, I was tested by one of my physicians
- 3% Yes, I was tested through a free program
- 21% Yes, I was tested through a research study
- 4% Yes, but I was not able to get genetic testing
- 2% Yes, but after genetic counseling, I decided against testing
- 1.5% Don't know/not sure whether I had genetic testing
- 0.5% Response was blank
Identify yourself results:
- 18% A person diagnosed with FTD
- 43% Biological family member of a person diagnosed with FTD
- 2% Non-biological family member, answering for a person diagnosed with FTD
- 34.5% Spouse, answering for a person diagnosed with FTD
- 1% Caregiver, answering for a person diagnosed with FTD
- 0.5% Friend, answering for a person diagnosed with FTD
- 1% Response was blank
Gender results:
- 67% Female
- 31% Male
- 0.5% Non-Binary
- 0.5% Prefer not to answer
- 1% Response was blank
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
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