PRESS & NEWS

Quick Question June 2022: Have you tried to get genetic testing for FTD over the last 3 years?

Quick-Questions-June-2022-blog-v3

RESULTS The following charts and lists are based on 852 submissions. Question results: 48% No, I have not tried to get genetic testing 6% No, I do not want genetic testing 4% No, I was tested more than 3 years ago 10% Yes, I was tested by one of my physicians 3% Yes, I was…

RESULTS

The following charts and lists are based on 852 submissions.

FTDDR_QQ-June-2022-Results-w

Question results:

  • 48% No, I have not tried to get genetic testing
  • 6% No, I do not want genetic testing
  • 4% No, I was tested more than 3 years ago
  • 10% Yes, I was tested by one of my physicians
  • 3% Yes, I was tested through a free program
  • 21% Yes, I was tested through a research study
  • 4% Yes, but I was not able to get genetic testing
  • 2% Yes, but after genetic counseling, I decided against testing
  • 1.5% Don't know/not sure whether I had genetic testing
  • 0.5% Response was blank
FTDDR_QQ-June-2022-Results-id-w

Identify yourself results:

  • 18% A person diagnosed with FTD
  • 43% Biological family member of a person diagnosed with FTD
  • 2% Non-biological family member, answering for a person diagnosed with FTD
  • 34.5% Spouse, answering for a person diagnosed with FTD
  • 1% Caregiver, answering for a person diagnosed with FTD
  • 0.5% Friend, answering for a person diagnosed with FTD
  • 1% Response was blank
FTDDR_QQ-June-2022-Results-gender-w

Gender results:

  • 67% Female
  • 31% Male
  • 0.5% Non-Binary
  • 0.5% Prefer not to answer
  • 1% Response was blank

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement