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Quick Question June 2023 Results: What types of insurance does/did the FTD-diagnosed person have?

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Thank you for taking the time to answer our Quick Questions.

Thank you for taking the time to answer our Quick Questions. The monthly feedback that you provide has helped us to better understand lived experiences with FTD.

In June 2023, our Quick Question asked about types of insurance coverage for persons diagnosed with frontotemporal dementia (FTD). A total of 697 respondents completed the question, which included FTD diagnosed individuals or loved ones answering on their behalf. Of the respondents, 671 reported having general medical health insurance, 172 have long-term care and 378 have life insurance. The respondents were able to select more than one option to best describe their total insurance coverage.

Medicare (454) was reported as the largest source of health insurance for FTD diagnosed individuals. Independent insurers (157) and employer sponsored insurance (157) were listed as the next highest insurance sources and family members' insurance closely followed with 127 selections. Other sources comprise smaller portions including marketplace, national health insurance and Medicaid. There were 10 responses that indicated no insurance coverage.

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The results included 643 United States respondents, which represented all 50 states. Canada  weighed in the highest among international countries with 31 responses. Other countries were Sri Lanka, South Africa, Portugal, New Zealand, Netherlands, Japan, Italy, India, France, Brazil, Bermuda, Barbados and Australia.

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