Posts by Mary Krause
Research Highlight: Experiences with Comorbid FTD and ALS
The FTD Insights Survey is the largest community survey of people with lived experience of FTD disorders. This survey queried on topics that included the diagnostic journey, disease symptoms, and their impacts on daily life. Shana Dodge, PhD, AFTD’s Director of Research Engagement, used data from the FTD Insights Survey in a poster session at…
Read MoreResearch Highlight: Exploring Families’ Interest in Understanding Genetic FTD
Kim Jenny, Manager of Genetic Initiatives for the Association for Frontotemporal Degeneration (AFTD), presented the results as a poster at the International Society for Frontotemporal Dementias (ISFTD)’s annual conference.
Read MoreResearch Highlight: Understanding Social Risk Factors in Research Participation
FTD Disorders Registry Program Manager and ALLFTD Liaison Sweatha Reddy presented a poster on Understanding Social Risk Factors in Research Participation at the Alzheimer’s Association International Conference in Philadelphia, PA.
Read More