Press

Research is our roadmap to breakthroughs, and sometimes setbacks are the fuel that drive us forward.

The FTD Disorders Registry showcased new insights at AAIC 2025.

Research is the key to unlocking treatments and, ultimately, a cure for frontotemporal degeneration..

528 participants responded to the FTD Disorders Registry’s July Quick Question on sleep difficulties.

Researchers have long understood that frontotemporal degeneration (FTD) is a neurodegenerative disease that begins in adulthood. But new questions are emerging.

Learn how collecting longitudinal data helps researchers track FTD progression over time and develop more effective diagnostics and treatments.

673 participants responded to the FTD 503 participants responded to the FTD Disorders Registry’s June Quick Question on how satisfied they are with the overall quality of medical care received for FTD. The results varied greatly.

Learn what happens next after you make the decision to join the FTD Disorders Registry.

The FTD Disorders Registry has launched a new Researcher Portal to accelerate study recruitment.

Learn how the FTD Disorders Registry helps accelerate research by connecting willing participants with studies focused on FTD disorders.