Posts by Bob Reinecker

A total of 564 people responded, offering important insight into how diagnosis can evolve over time and reflecting the complexity many families face on the FTD journey.

A total of 496 people responded. Responses showed that healthcare interactions are a regular part of life for many in the FTD community.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.

A total of 533 community members shared their experiences, offering valuable insight into the diagnostic journey. These responses help deepen our understanding of the challenges individuals and families face and highlight opportunities to improve earlier recognition and access to care.

534 individuals responded, providing insight into how symptoms of FTD can sometimes intersect with law enforcement

The highest response was access to specialists with FTD experience with 20.4%. There was also strong support for emotional or mental health support for patient and/or caregiver at 15.2% and …

712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.

353 people responded, sharing insights on the physical challenges that can come with FTD.

About 33% reported that they are actively exploring care options …

Life with FTD is about so much more than medical symptoms. To better understand the impact of FTD disorders, our September Quick Question asked …