Press

Understanding the experiences of people living with Frontotemporal degeneration (FTD) disorders and those supporting them is essential to developing clinical tools and research studies that address the specific needs of this group. Launched in June 2022 by the FTD Disorders Registry (FTDDR), #FTDQuickQuestions serves to engage people in the FTD community in anonymous, real-time data…

“Have you ever served in the military?” The purpose of this quick question was to assess the military status of individuals diagnosed with FTD.

Are you interested in knowing your genetic risk for developing FTD?

Legacy and Science: Understanding Brain Donation for Neurodegenerative Diseases – July 20, 2023 @ 1:30 pm – 2:30 pm

Thank you for taking the time to answer our Quick Questions.

Thank you for taking the time to answer our Quick Questions.

Do you have questions about urinary symptoms related to PSP, CBD and MSA? Join this CurePSP webinar and get your questions answered.

Of the 809 people who responded to our April 2023 Quick Question, 65% do not participate in an FTD Support Group.

The FTD Registry’s email newsletter articles are the No. 1 way people learn about FTD research studies through the FTD Disorders Registry, according to the March 2023 Quick Question.

Discover new self-care techniques and interact with others who are searching for ways to maintain wellness during a CurePSP virtual workshop on Wednesday, April 19, 2023