NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
NUMBERS HAVE POWER.
JOIN THE REGISTRY.
ADVANCE THE SCIENCE.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
AND NOW WE WORK TOGETHER >
Will you join the community working to end FTD?
WHO CAN JOIN >
Anyone with a connection to FTD disorders and an interest in research is encouraged to join the Registry, including:
- people diagnosed with an FTD disorder
- biological family members
- spouses
- caregivers
- friends
- physicians
- and other healthcare professionals
UPDATES
Quick Question August 2026 Result:
In our August Quick Question, we asked Registry participants, “Have you experienced any safety concerns related to FTD in the past year?” A total of 516 people responded, offering a snapshot …
Understanding the Different Ways to Participate in FTD Research
There are many ways to participate in research. Learn the different options to choose what is best for you and your family.
A New Approach to PSP Research: Understanding the PSP Trial Platform
The PSP Trial Platform is using an innovative approach to study multiple potential treatments within one shared clinical trial framework. Learn how this new model could help advance PSP research and make clinical trials more efficient.
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Quick Question September 2026 Result:
Behavioral changes are a common and often challenging aspect of frontotemporal degeneration (FTD), affecting both individuals diagnosed and those who care for them. These changes can take many forms, from shifts in personality and …
What Happens at an FTD Research Conference?
What happens when the FTD research community comes together? See how conferences help researchers share findings, build collaborations, and keep the experiences of people impacted by FTD at the center of research.
Quick Question September 2026 Result:
Behavioral changes are a common and often challenging aspect of frontotemporal degeneration (FTD), affecting both individuals diagnosed and those who care for them. These changes can take many forms, from shifts in personality and …
WAYS TO HELP
JOIN US TODAY
Be part of the community working to end FTD. Every voice counts.
PARTICIPATE IN RESEARCH
Support the science for an FTD cure. Sign up here.
SPREAD THE WORD
Invite family and friends to join the growing FTD Registry.
THE FTD REGISTRY IS A PARTNERSHIP OF:
