AFTD 2021 Education Conference: May 13-14, 2021

Tia Powell, M.D.
Director of the Montefiore Einstein Center for Bioethics, Dr. Powell is a leading psychiatrist, bioethicist, and author of Dementia Reimagined, who will speak to a need to transform the culture of dementia care, for the benefit of people with dementia, their care partners, and their families.

Chiadi Onyike, M.D., MHS
Associate Professor of Psychiatry and Behavioral Sciences, Director of the FTD and Young-Onset Dementias Program at Johns Hopkins University, Dr. Onyike will share vital perspective on what is known about FTD across cultures, and the need for continued research and additional understanding in this area.

Adam Staffaroni, Ph.D.
Assistant Professor in the Department of Neurology, Memory and Aging Center at the University of California San Francisco. An investigator with the ALLFTD longitudinal studies, he is also leading two studies of remote data collection in FTD, and will provide an update on current major FTD research initiatives.

Elizabeth Finger, MD
Assistant Professor of Neurology in the Schulich School of Medicine & Dentistry at Western University. Her research focuses on understanding decision-making, emotion, and social behavior in FTD. She will speak to emerging clinical trials for pharmacological and non-pharmacological interventions in FTD.

CONFERENCE HIGHLIGHTS

• Peter Pressman, M.D., of the University of Colorado, will present an introduction to FTD disorders, available on-demand before the conference.
• Julie Robillard, Ph.D., will speak about how e-health and assistive technology can play a growing role in dementia care.
• Lauren Massimo, Ph.D., Jennifer Pilcher, Ph.D., Katie Brandt, MM, Mary O’Hara, LCSW, and Maya Henry, Ph.D., will speak to critical aspects of bvFTD and PPA care.
• Nikolaus McFarland, M.D., Ph.D., and Janet Edmunson will speak about FTD movement disorders and approaches to care.
• Interact live with presenters via Q&A, chat, and join other opportunities to participate.

AGENDA

Thursday, May 13, 2021

• 12:00 p.m. Welcome
• 12:05 p.m. Transforming the Culture of Dementia Care
  Tia Powell, MD, Albert Einstein College of Medicine
• 12:30 p.m. Our Voice: A Discussion with People with FTD
  AFTD Persons with FTD Advisory Council
• 1:00 p.m. Break
• 1:15 p.m. Breakout Sessions - choose one
• 2:00 p.m. Update on Major FTD Research Initiatives
  Adam Staffaroni, PhD, University of California San Francisco
• 2:30 p.m. Break
• 2:45 p.m. Emerging FTD Clinical Trials
  Elizabeth Finger, MD, Western University
• 3:15 p.m. Dementia Care: The Role of E-Health and Assistive Technology
  Julie Robillard, Ph.D., University of British Columbia
• 3:45 p.m. Interactive Day 1 Closing Session
  Kat Primeau, AFTD Volunteer

Friday, May 14, 2021

• 12:00 p.m. Welcome
• 12:05 p.m. Cultural Perspectives in FTD
  Chiadi Onyike, MD, Johns Hopkins University
• 12:30 p.m. Building a Care Team in Your Community
  Allison Lindauer, Ph.D., Oregon Health & Science University
  Maya Lichtenstein, MD, Geisinger Medical Center
• 1:00 p.m. Break
• 1:15 p.m. Breakout Sessions - choose one
• 2:00 p.m. Apathy in FTD: A Roundtable Discussion
  Lauren Massimo, Ph.D., University of Pennsylvania, with people and family members affected by FTD.
• 2:30 p.m. Break
• 2:45 p.m. Advocating for Comprehensive FTD Supports
  Jennifer Pilcher, Ph.D., Clear Guidance
  Katie Brandt, MM, Massachusetts General Hospital
• 3:15 p.m. AFTD 2020 Highlights
  Susan L-J Dickinson, MSGC, CEO,  AFTD
• 3:30 p.m. Interactive Day 2 Closing Session
  Kat Primeau, AFTD Volunteer