Caregivers can learn techniques to cope with burnout and to become empowered and inspired to live healthier and happier lives at the CurePSP Virtual Caregiver Conference on Friday, November 13, 2020. Sessions will run from 11:00 a.m. to 2:30 p.m. ET (8:00 to 11:30 a.m. PT) Cost is $10.
This event is for caregivers of loved ones who have been diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). It is the first of two days of online sessions for caregivers and patients to feel supported and let them know that they are not alone. CurePSP’s Virtual Family Conference for diagnosed persons and their families will be held on Saturday, November 14, 2020. Learn more here.
The November 13th conference will also allow caregivers an opportunity to exchange ideas and information as well as interact with people who are also on this journey. The event provides caregivers with hope for a brighter future while they look after a loved one who has a neurodegenerative disease.
Topics to be covered will include:
- Meditation and Mindfulness Techniques
- "If I Knew Then What I Know Now"
- Nutrition for Caregivers
- Stress Management
- Community Support Access
Featured speakers will be:
- Diane S. Adkins, MA, MLIS, Board Member, MSA Coalition
- Fernando Coelho, Yoga Instructor
- Elaine Douglas, Caregiver Representative, MSA Coalition
- Gregg Felice, LCSW-R, Director of Patient & Carepartner Advocacy, CurePSP
- Larry Kellerman, Ph.D., Board Member, MSA Coalition
- Jamie Lynn Garry, MS, RD, LDN, CBDT, RYT, Senior Clinical Research Dietitian, Massachusetts General Hospital
- Ileen McFarland, Patient and Carepartner Advocacy Committee Chair, CurePSP
- Trina Nieser, Neurodiagnostics Care Coordinator, UT Southwestern Medical Center
The webinar will be set up on the Zoom platform. Registration is required. If you are unable to afford the conference, please use the promo code CUREPSP100 at checkout for a free ticket.
Those who register will receive a link to the webinar twice from Eventbrite before the event: (1) two hours before it begins and (2) ten minutes before. If you do not see these emails in your inbox, please check your spam/junk folder.
Social Listening Mural
You can be included in the creation of a social listening mural by sharing your story of hope. CurePSP has partnered with ImageThink to create this masterpiece. Tell your story when you register or you can do so here (be as specific and illustrative as possible). Consider answering the question: What moment do you feel most embodies Care and Hope in your personal story? Later, see it transformed into a hand-drawn graphic mural to be unveiled during the CurePSP Virtual Family Conference on November 14th.
"Conference at Home" Boxes
Be prepared to learn with everything you need with a box of CurePSP supplies. Each box includes:
- One 8.5" x 11" Notepad
- Two Pens
- Two Wristbands
- One First Aid Kit
- One Red Tote Bag
- One Reusable Metal Straw
- Two Face Masks
Each box is $75 and includes shipping and handling. You can purchase them along with your ticket or separately through the Eventbrite link. Orders are submitted weekly on Fridays and fulfilled the following business day. Please allow 7-10 days for shipping. Refunds are not available at this time.
For any questions, please contact CurePSP at email@example.com.
Get decked out in CurePSP swag available here and take a picture for the online photo gallery. Photos can be emailed to firstname.lastname@example.org or post it on Facebook or Instagram and tag it with #curepsp
To email pictures:
- Provide a high-resolution image with text in a JPEG or PNG format.
- Images can be no more than 31.25 times wider than they are tall.
- Photos must be 200 MB or smaller.
- Include your name, phone number, and organization name in your email.
For any questions about merchandise, please contact CurePSP at email@example.com.
This event is supported in part by the Light of Day Foundation Inc., which uses the power of music to raise money and awareness to battle and defeat Parkinson’s disease and its related illnesses ALS (Amyotrophic Lateral Sclerosis) and PSP. In addition, the social listening mural is available for sponsorship. Organizations that wish to sponsor this or other CurePSP events can contact Jaclyn Zendrian at firstname.lastname@example.org for more information.
CurePSP is a nonprofit organization working to increase awareness, advocate for patients and families, and fund research for devastating prime of life neurodegenerative diseases, including PSP, CBD, and MSA. CurePSP provides advocacy and support for patients, families, and caregivers; education for physicians and allied healthcare professionals; and funding for research.