Persons diagnosed with neurodegenerative diseases and their families can learn management techniques during the CurePSP Virtual Family Conference on Saturday, November 14, 2020. Online sessions will run from 10:30 a.m. to 3:00 p.m. ET (7:30 a.m. to 12:00 p.m. PT). Cost is $10.
This event is for patients, caregivers, and family members who are affected by progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). It is the second of two days of meetings. The CurePSP Virtual Caregiver Conference is Friday, November 13, 2020. Learn more here.
The November 14th conference will cover topics including:
- Benefits of Building a Care Team and Support Network
- Discussing Your Diagnosis and Family Dynamics
- A CurePSP Center of Care
- Clinical Trial Updates
- Medical Myths
- Available Resources
Speakers who will present include:
- Diane Breslow, MSW, LCSW, Patient and Carepartner Advocacy Committee Member, CurePSP
- Kristophe Diaz, Ph.D., Vice President of Scientific Affairs, CurePSP
- Samantha Elandary, MA, CCC-SLP, Founder & Chief Executive Officer, Parkinson Voice Project
- Jori Fleischer, MD, MSCE, Rush University
- Diana R. Kerwin, M.D., CPI, Founder - President, Kerwin Research Center & Memory Care
- Jessica Shurer, MSW, LCSW, University of North Carolina
The webinar will be set up on the Zoom platform. Registration is required. If you are unable to afford the conference, please use the promo code CUREPSP100 at checkout for a free ticket.
Those who register will receive a link to the webinar twice from Eventbrite before the event: (1) two hours before it begins and (2) ten minutes before. If you do not see these emails in your inbox, please check your spam/junk folder.
Social Listening Mural
You can be included in the creation of a social listening mural by sharing your story of hope. CurePSP has partnered with ImageThink to create this masterpiece. Tell your story when you register or you can do so here (be as specific and illustrative as possible). Consider answering the question: What moment do you feel most embodies Care and Hope in your personal story? Later, see it transformed into a hand-drawn graphic mural to be unveiled during this conference.
"Conference at Home" Boxes
Be prepared to learn with everything you need with a box of CurePSP supplies. Each box includes:
- One 8.5" x 11" Notepad
- Two Pens
- Two Wristbands
- One First Aid Kit
- One Red Tote Bag
- One Reusable Metal Straw
- Two Face Masks
Each box is $75 and includes shipping and handling. You can purchase them along with your ticket or separately through the Eventbrite link. Orders are submitted weekly on Fridays and fulfilled the following business day. Please allow 7-10 days for shipping. Refunds are not available at this time.
For any questions, please contact CurePSP at email@example.com.
Get decked out in CurePSP swag available here and take a picture for the online photo gallery. Photos can be emailed to firstname.lastname@example.org or post it on Facebook or Instagram and tag it with #curepsp
To email pictures:
- Provide a high-resolution image with text in a JPEG or PNG format.
- Images can be no more than 31.25 times wider than they are tall.
- Photos must be 200 MB or smaller.
- Include your name, phone number, and organization name in your email.
For any questions about merchandise, please contact CurePSP at email@example.com.
This event is supported in part by the Light of Day Foundation Inc., which uses the power of music to raise money and awareness to battle and defeat Parkinson’s disease and its related illnesses ALS (Amyotrophic Lateral Sclerosis) and PSP. In addition, the social listening mural is available for sponsorship. Organizations that wish to sponsor this or other CurePSP events can contact Jaclyn Zendrian at firstname.lastname@example.org for more information.
CurePSP is a nonprofit organization working to increase awareness, advocate for patients and families, and fund research for devastating prime of life neurodegenerative diseases, including PSP, CBD, and MSA. CurePSP provides advocacy and support for patients, families, and caregivers; education for physicians and allied healthcare professionals; and funding for research.