PRESS & NEWS

Poked & Scanned: Procedures Used in Research Studies

Those who enroll in research and undergo the procedures can help advance science and bring us closer to when these diseases are in the past. Learn about these tests and hear one research participant’s thoughts.

more >

AFTD Food For Thought 2022

Everybody eats, but not everybody knows about frontotemporal degeneration (FTD).

more >

Quick Question June 2022: Have you tried to get genetic testing for FTD over the last 3 years?

RESULTS The following charts and lists are based on 852 submissions. Question results: 48% No, I have not tried to get…

more >

FTD Registry Launches Quick Questions Campaign: June 2022

The FTD Disorders Registry invites you to answer our monthly Quick Questions!

more >

Remember Me Podcast Discusses ALLFTD Study – June 2022

Rachel and Maria, founders of the Remember Me Podcast, joined the ALLFTD Study and produced eight podcast episodes in June 2022…

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement