PRESS & NEWS

Quick Question December 2022 Results: With Whom Does/Did the FTD-diagnosed Person Live?

Of the 817 responses to our Quick Question, nearly half (400) indicated that the FTD-diagnosed person lives or lived with their spouse and children …

more >

FTD Registry Receives 2022 MarDreamies Award for Grassroots Innovation

The FTD Disorders Registry received the 2022 MarDreamies Award for Grassroots Innovation for its use of technology to collect data from participants …

more >

CurePSP Community Conversations Webinar February 2, 2023

CurePSP is hosting a Community Conversations webinar about “The Powerful Role of Grandchildren Caring for PSP, CBD, and MSA” on Thursday, February 2

more >

Quick Question November 2022 Results: At what age did the FTD-diagnosed person show their first symptom?

The age range most reported for when the first frontotemporal degeneration (FTD) symptom appeared was between 55 and 59 years (158 people)

more >

CurePSP Ask the Expert with Dr. Travis Turner: Dec. 12, 2022

Travis Turner, PhD, will discuss Assessing Cognitive Changes with PSP, CBD, and MSA during a CurePSP Ask the Expert webinar on Monday, Dec.

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement