Posts by Bob Reinecker

635 people answered our question
The top three answers were:
– Advancing research to benefit others at risk for impacted by FTD disorders (64%)
– Access to new treatments that aren’t available yet – (57.7%)
– Access to my study test results – (56.2%)

500 people answered the FTD Disorders Registry’s December Quick Question about what type of non-medical interventions have made a positive difference for the person diagnosed with an FTD Disorder.

The FTD Disorders Registry’s November Quick Question received 396 responses about the type of support families with genetic FTD need.

552 people answered the FTD Disorders Registry’s October Quick Question about how much they felt participation in the Registry could contribute to advances in FTD research.

698 people answered the FTD Disorders Registry’s September Quick Question about whether they were a current caregiver for someone with an FTD disorder.

460 people answered the FTD Disorders Registry’s August Quick Question about whether they would be willing to participate in a remote research study asking about their symptoms and treatment prescribed for FTD.

405 people answered the FTD Disorders Registry’s July Quick Question about participation in the new Registry platform.

872 people answered the FTD Disorders Registry’s June Quick Question which asked how many languages do you speak.

807 people answered the FTD Disorders Registry’s May Quick Question …

678 people answered the FTD Disorders Registry’s February Quick Question about the impact of FTD on employment.