Press

The FTD Disorders Registry’s November Quick Question received 396 responses about the type of support families with genetic FTD need.

552 people answered the FTD Disorders Registry’s October Quick Question about how much they felt participation in the Registry could contribute to advances in FTD research.

Kim Jenny, Manager of Genetic Initiatives for the Association for Frontotemporal Degeneration (AFTD), presented the results as a poster at the International Society for Frontotemporal Dementias (ISFTD)’s annual conference.

FTD Disorders Registry Program Manager and ALLFTD Liaison Sweatha Reddy presented a poster on Understanding Social Risk Factors in Research Participation at the Alzheimer’s Association International Conference in Philadelphia, PA.

698 people answered the FTD Disorders Registry’s September Quick Question about whether they were a current caregiver for someone with an FTD disorder.

460 people answered the FTD Disorders Registry’s August Quick Question about whether they would be willing to participate in a remote research study asking about their symptoms and treatment prescribed for FTD.

405 people answered the FTD Disorders Registry’s July Quick Question about participation in the new Registry platform.

872 people answered the FTD Disorders Registry’s June Quick Question which asked how many languages do you speak.

807 people answered the FTD Disorders Registry’s May Quick Question …

678 people answered the FTD Disorders Registry’s February Quick Question about the impact of FTD on employment.