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Learn how to find FTD clinical trials and stay informed as new research opportunities emerge.

AviadoBio has expanded its ASPIRE-FTD clinical trial, creating new opportunities for people with GRN mutations to participate in gene therapy research.

534 individuals responded, providing insight into how symptoms of FTD can sometimes intersect with law enforcement

Care partners play a vital role in helping researchers understand how the impact of FTD unfolds in daily life. Through their observations, experiences, and participation in the FTD Disorders Registry, care partners provide insights that shape future studies and ensure research reflects the real challenges families face.

CurePSP’s Louder Than Words program provides free voice banking and AI voice cloning tools for people living with PSP, CBD, and MSA, helping individuals preserve their voice and stay connected with loved ones even if speech becomes difficult.

FTD is a spectrum, not a single diagnosis. Recognizing the differences between subtypes helps researchers design smarter studies, accelerate discoveries, and move us closer to effective treatments.

Being counted is an act of hope, a way for individuals and families impacted by frontotemporal degeneration to turn their lived experience into momentum for research, visibility, and a future with better diagnosis, care, and treatments.

Ever wonder why the Registry asks about finances or work life? Here’s how those questions help move FTD research forward.

The highest response was access to specialists with FTD experience with 20.4%. There was also strong support for emotional or mental health support for patient and/or caregiver at 15.2% and …

You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.