Press

FTD research depends on participants, families, clinicians, researchers, data, and collaboration working together. Each plays a different role in helping move research forward.

In our August Quick Question, we asked Registry participants, “Have you experienced any safety concerns related to FTD in the past year?” A total of 516 people responded, offering a snapshot …

There are many ways to participate in research. Learn the different options to choose what is best for you and your family.

The PSP Trial Platform is using an innovative approach to study multiple potential treatments within one shared clinical trial framework. Learn how this new model could help advance PSP research and make clinical trials more efficient.

The FTD Disorders Registry was created to share the many perspectives of the lived experience of FTD disorders.

We heard from 500 members of the FTD community, offering valuable insight into how technology is being used to navigate the challenges of FTD disorders.

The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.

A total of 564 people responded, offering important insight into how diagnosis can evolve over time and reflecting the complexity many families face on the FTD journey.

Researchers working on FTD studies often face a major challenge: not enough participants. By joining the FTD Disorders Registry, you can help build a stronger, more research-ready community.

It is important to login to your Registry dashboard regularly to review pending activities and keep your profile up-to-date.