Press

The highest response was access to specialists with FTD experience with 20.4%. There was also strong support for emotional or mental health support for patient and/or caregiver at 15.2% and …

You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.

While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.

What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?

Progress toward an FTD cure depends on communities and researchers working together.

712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.

As 2025 comes to a close, we reflect on a year of growth and engagement that underscores the FTD Disorders Registry’s role in advancing research and amplifying the voices of those impacted by FTD.

The FTD Disorders Registry was featured at CTAD in San Diego, where a poster presented by Dr. Shana Dodge highlighted how the Registry is helping accelerate clinical trial recruitment in frontotemporal degeneration.

353 people responded, sharing insights on the physical challenges that can come with FTD.

Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.