PRESS & NEWS

Quick Question May 2025 Result:

673 participants responded to the FTD Disorders Registry’s May Quick Question on their diagnosis journey.

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Penn FTD Center visit

Inside the Penn FTD Center

The FTD Disorders Registry joined FTD community advocates for a behind-the-scenes tour of the Penn FTD Center,

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How Registry Data Is Advancing FTD Research—and Why It Matters

The FTD Disorders Registry is a powerful resource for scientists studying FTD disorders. Learn more about how your de-identified data is used.

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FTD: The Other Side of ALS 

When people hear “ALS,” they often think of Lou Gehrig, ice bucket challenges, and the devastating loss of motor function that…

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Two Drugs Selected for New PSP Platform Trial

The Association for Frontotemporal Degeneration (AFTD) has shared that two drugs have been selected for evaluation in a new platform trial aimed at accelerating the development of treatments for progressive supranuclear palsy (PSP).

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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