PRESS & NEWS

Quick Question April 2023 Results: Do You Participate in an FTD Support Group?

Of the 809 people who responded to our April 2023 Quick Question, 65% do not participate in an FTD Support Group.

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Quick Question March 2023 Results: Which FTD Registry communications help you learn about reach opportunities?

The FTD Registry’s email newsletter articles are the No. 1 way people learn about FTD research studies through the FTD Disorders Registry, according to the March 2023 Quick Question.

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CurePSP Wellness Workshop: Holistic Wellness for PSP, CBD & MSA April 19, 2023

Discover new self-care techniques and interact with others who are searching for ways to maintain wellness during a CurePSP virtual workshop on Wednesday, April 19, 2023

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Agenda Set for 2023 AFTD Education Conference

Sessions have been announced for those attending the AFTD 2023 Education Conference, both in St. Louis and virtually. These include in-person pre-conference sessions, breakout sessions, and the conference agenda.

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Quick Question February 2023 Results: What Resources Do/Did You Use to Help Care for Yourself or Your FTD-Diagnosed Loved One?

The majority of people who responded to our February 2023 Quick Question use online educational materials (569) to help care for themselves or their FTD-diagnosed loved one.

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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