PRESS & NEWS

ORION Trial Ends, Reinforcing the Need for Continued FTD Research

Research is our roadmap to breakthroughs, and sometimes setbacks are the fuel that drive us forward.

Registry Data Featured at AAIC 2025

The FTD Disorders Registry showcased new insights at AAIC 2025.

The Importance of Research in Finding a Cure for FTD Disorders

Research is the key to unlocking treatments and, ultimately, a cure for frontotemporal degeneration..

Quick Question July 2025 Result:

528 participants responded to the FTD Disorders Registry’s July Quick Question on sleep difficulties.

New Study Explores How FTD-Linked Genes May Shape Brain

Researchers have long understood that frontotemporal degeneration (FTD) is a neurodegenerative disease that begins in adulthood. But new questions are emerging.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement