PRESS & NEWS

Quick Question June 2025 Result:

673 participants responded to the FTD 503 participants responded to the FTD Disorders Registry’s June Quick Question on how satisfied they are with the overall quality of medical care received for FTD. The results varied greatly.

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What Happens After You Join the FTD Disorders Registry?

What Happens After You Join the FTD Disorders Registry?

Learn what happens next after you make the decision to join the FTD Disorders Registry.

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FTD Registry Launches New Researcher Portal to Accelerate Study Recruitment

FTD Registry Launches New Researcher Portal to Accelerate Study Recruitment

The FTD Disorders Registry has launched a new Researcher Portal to accelerate study recruitment.

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Accelerating FTD Research: How the Registry Supports Study Recruitment

Accelerating FTD Research: How the Registry Supports Study Recruitment

Learn how the FTD Disorders Registry helps accelerate research by connecting willing participants with studies focused on FTD disorders.

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Why Your Family's Story Matters: The Power of Genetic Counseling and Genetic Testing in FTD Disorders

Why Your Family’s Story Matters: The Power of Genetic Counseling and Genetic Testing in FTD Disorders

Understanding the genetic component of FTD can help families make informed health decisions and contribute to critical research that is paving the way toward earlier detection and better treatments.

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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