Progress toward an FTD cure depends on communities and researchers working together.

712 people responded and your responses are already helping us deepen scientific understanding of this symptom and will contribute directly to future research.

As 2025 comes to a close, we reflect on a year of growth and engagement that underscores the FTD Disorders Registry’s role in advancing research and amplifying the voices of those impacted by FTD.

The FTD Disorders Registry was featured at CTAD in San Diego, where a poster presented by Dr. Shana Dodge highlighted how the Registry is helping accelerate clinical trial recruitment in frontotemporal degeneration.

353 people responded, sharing insights on the physical challenges that can come with FTD.