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NIH Booklet Offers Insight to FTD, Its Symptoms, Diagnosis, Treatment, Care

The National Institutes of Health (NIH) offers a free pamphlet about frontotemporal degeneration (FTD) that is meant to help diagnosed persons, family members, and caregivers learn more about...more >


Orphan Drug May Reverse Progranulin Deficiency

AL001 was seen to be generally safe and well-tolerated based on the results of the Phase 1 portion of the INFRONT clinical study.

Alector, Inc. recently reported positive data...more >


When It’s NOT Alzheimer’s Presentation: September 25, 2019

The New York Memory Center in New York City will be hosting an event titled “When It’s NOT Alzheimer’s” to discuss lesser-known dementias, including frontotemporal degeneration (FTD).

This...more >


AFTD's Food for Thought Campaign: Sept. 22 - Oct. 6, 2019

Serve some food. Share your story. Spread the word.

You can affect change, increase understanding of frontotemporal degeneration (FTD), and raise funds for research by...more >


FTDDR seeks Registry Manager

The FTD Disorders Registry (FTDDR), LLC was founded in 2015 as a 501(c)3 nonprofit entity with the mission to curate a patient registry to facilitate and advance research for the entire...more >