PRESS & NEWS

Registry Data Presented at the NEALS Consortium

Registry data is helping to bridge the gap between the FTD and ALS research communities and to accelerate recruitment for future clinical trials.

more >

What the Registry Community Is Most Interested In

Registry data reveal which FTD subtypes and genes have the highest representation of research-ready participants, helping scientists design stronger, more focused studies.

more >

Alector Announces Results from Phase 3 INFRONT-3 Trial of Latozinemab for FTD-GRN

Alector has announced topline results from its Phase 3 INFRONT-3 trial of latozinemab for FTD-GRN.

more >

Quick Question September 2025 Result:

Life with FTD is about so much more than medical symptoms. To better understand the impact of FTD disorders, our September Quick Question asked …

more >
The Road Ahead: How Registry Data Can Drive Breakthroughs

The Road Ahead: How Registry Data Can Drive Breakthroughs

Progress is possible. See how Registry data can unlock breakthroughs in FTD research just as new treatments are showing progress in other neurological disorders.

more >

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

Read Full Privacy Statement