PRESS & NEWS

a year of growth at the FTD Disorders Registry

A Year of Growth and Impact: 2025 at the FTD Disorders Registry

As 2025 comes to a close, we reflect on a year of growth and engagement that underscores the FTD Disorders Registry’s role in advancing research and amplifying the voices of those impacted by FTD.

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FTD Disorders Registry Research at CTAD 2025

FTD Disorders Registry Research at CTAD 2025

The FTD Disorders Registry was featured at CTAD in San Diego, where a poster presented by Dr. Shana Dodge highlighted how the Registry is helping accelerate clinical trial recruitment in frontotemporal degeneration.

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Quick Question November 2025 Result:

353 people responded, sharing insights on the physical challenges that can come with FTD.

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What We Learn From Every Drop: The Power of Biosamples in FTD

What We Learn From Every Drop: The Power of Biosamples in FTD

Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.

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Quick Question October 2025 Result:

About 33% reported that they are actively exploring care options …

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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