Researchers working on FTD studies often face a major challenge: not enough participants. By joining the FTD Disorders Registry, you can help build a stronger, more research-ready community.

It is important to login to your Registry dashboard regularly to review pending activities and keep your profile up-to-date.

A total of 496 people responded. Responses showed that healthcare interactions are a regular part of life for many in the FTD community.

We often talk about deidentified data provided to researchers., but what does “deidentified data” really mean, and how can it help advance FTD research while protecting your privacy?

Frontotemporal degeneration research is becoming more collaborative, offering real momentum toward faster trials and more meaningful progress for families impacted by the disease.