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Minority Voices: Ensuring Racial and Cultural Diversity in Research

Research has shown that African-Americans are twice as likely and Latinos are one and a half times more likely than non-Hispanic whites to be diagnosed with Alzheimer’s disease. Yet according to...more >


World FTD Awareness Week: September 22-29, 2019

This fall from September 22-29, 2019, World FTD Awareness Week will celebrate its fifth year. The week is to focus on what FTD is (frontotemporal degeneration), increase awareness, and provide...more >


Whitelist the FTD Registry Email Addresses

Don’t miss any FTD Disorders Registry news! 

You receive The Voice of FTD newsletter because you signed up via our website when you enrolled in the Contact...more >


NIH Booklet Offers Insight to FTD, Its Symptoms, Diagnosis, Treatment, Care

The National Institutes of Health (NIH) offers a free pamphlet about frontotemporal degeneration (FTD) that is meant to help diagnosed persons, family members, and caregivers learn more about...more >


Orphan Drug May Reverse Progranulin Deficiency

AL001 was seen to be generally safe and well-tolerated based on the results of the Phase 1 portion of the INFRONT clinical study.

Alector, Inc. recently reported positive data...more >