IN THE WORLD OF FTD,
EVERY STORY ADVANCES
THE SCIENCE.
Starting with yours.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
IN THE WORLD OF FTD, EVERY STORY ADVANCES THE SCIENCE.
Starting with yours.
IN THE WORLD OF FTD,
EVERY STORY ADVANCES
THE SCIENCE.
Starting with yours.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.
WHAT IS THE FTD DISORDERS REGISTRY?
The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):
Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:
AND NOW WE WORK TOGETHER >
Will you join the community working to end FTD?
I AM DIAGNOSED WITH FTD
enrolling myself in the Registry or joining with the help of a care partner.
I AM A FAMILY MEMBER (BIOLOGICAL RELATIVE)
of a person who is/was diagnosed with FTD enrolling myself in the Registry.
I AM A SPOUSE, CAREGIVER, OR FRIEND
of a person who is/was diagnosed with FTD enrolling myself in the Registry.
UPDATES
6704
persons
joined the
registry
1699
persons
diagnosed
with ftd
2854
Biological
Family
Members
2151
Spouses,
caregivers,
friends
FTD Disorders Registry Highlights Research at AAIC 2026
The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.
WAYS TO HELP
JOIN US TODAY
Be part of the community working to end FTD. Every voice counts.
PARTICIPATE IN RESEARCH
Support the science for an FTD cure. Sign up here.
SPREAD THE WORD
Invite family and friends to join the growing FTD Registry.
THE FTD REGISTRY IS A PARTNERSHIP OF:
