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What is the FTD Disorders Registry?

The Registry is an online database that collects information from those affected by all types of frontotemporal degeneration (FTD):

  • behavioral variant FTD (bvFTD)
  • primary progressive aphasias (PPA)
  • progressive supranuclear palsy (PSP)
  • corticobasal degeneration (CBD)
  • FTD with motor neuron disease (also called FTD-ALS)

Persons diagnosed, current and former caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. The first step is simple:

Join the Registry. Tell your story. Advance the science.

And Now We Work Together >  Will you join the community working to end FTD?
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I am Diagnosed with FTD

enrolling myself in the Registry or joining with the help of a care partner.

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I am a Family Member (Biological Relative)

of a person who is/was diagnosed with FTD enrolling myself in the Registry.

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I am a Spouse, Caregiver, or Friend

of a person who is/was diagnosed with FTD enrolling myself in the Registry.

4723
PERSONS JOINED THE REGISTRY
1957
BIOLOGICAL FAMILY MEMBERS
979
PERSONS DIAGNOSED WITH FTD
1787
SPOUSES, CAREGIVERS, FRIENDS

Ways to Help

JOIN US TODAY

Be part of the community working to end FTD. Every voice counts.

PARTICIPATE IN RESEARCH

Support the science for an FTD cure. Sign up here.

SPREAD THE WORD

Invite family and friends to join the growing FTD Registry.

The ftd registry is a partnership of:

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