PRESS & NEWS

why we ask the questions we ask

Why We Ask the Questions We Ask

Ever wonder why the Registry asks about finances or work life? Here’s how those questions help move FTD research forward.

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Quick Question January 2026 Result:

The highest response was access to specialists with FTD experience with 20.4%. There was also strong support for emotional or mental health support for patient and/or caregiver at 15.2% and …

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You Joined. Now What? Five Small Ways to Stay Research Ready

You Joined. Now What? Five Small Ways to Stay Research Ready

You joined the FTD Disorders Registry. Now learn five simple ways to stay research ready and strengthen the future of FTD research.

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Prevail Therapeutics PR006 Trial Discontinued

While the PR006 program has been discontinued, research into FTD continues. Here’s what this update means for the community and the path forward.

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what makes a registry research ready

What Makes a Registry “Research Ready”?

What does it really mean for an FTD registry to be research ready, and why does community participation matter so much?

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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