Penn Familial Conference: Uncovering the Genetics of FTD/ALS Feb. 28, 2023
Registration is now open for the annual Penn Frontotemporal Degeneration (FTD) Familial Conference: Uncovering the Genetics of FTD/ALS. This event will be held virtually Tuesday, February 28, 2023. more >
FTD Registry Publishes First Full-length, Peer-reviewed Article in 2022
The FTD Disorders Registry in collaboration with the Association for Frontotemporal Degeneration (AFTD) published its first full-length, peer-reviewed journal article in 2022. more >
Quick Question December 2022 Results: With Whom Does/Did the FTD-diagnosed Person Live?
Of the 817 responses to our Quick Question, nearly half (400) indicated that the FTD-diagnosed person lives or lived with their spouse and children ... more >
FTD Registry Receives 2022 MarDreamies Award for Grassroots Innovation
The FTD Disorders Registry received the 2022 MarDreamies Award for Grassroots Innovation for its use of technology to collect data from participants ... more >
CurePSP Community Conversations Webinar February 2, 2023
CurePSP is hosting a Community Conversations webinar about “The Powerful Role of Grandchildren Caring for PSP, CBD, and MSA” on Thursday, February 2 more >