PRESS & NEWS
The FTD Disorders Registry presented a poster highlighting the value of the Registry at AAIC 2026.
A total of 564 people responded, offering important insight into how diagnosis can evolve over time and reflecting the complexity many families face on the FTD journey.
Researchers working on FTD studies often face a major challenge: not enough participants. By joining the FTD Disorders Registry, you can help build a stronger, more research-ready community.
It is important to login to your Registry dashboard regularly to review pending activities and keep your profile up-to-date.
A total of 496 people responded. Responses showed that healthcare interactions are a regular part of life for many in the FTD community.
Together we can find a cure for ftd
The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.
Your privacy is important! We promise to protect it. We will not share your contact information.