PRESS & NEWS

What the Registry Community Is Most Interested In

Registry data reveal which FTD subtypes and genes have the highest representation of research-ready participants, helping scientists design stronger, more focused studies.

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Alector Announces Results from Phase 3 INFRONT-3 Trial of Latozinemab for FTD-GRN

Alector has announced topline results from its Phase 3 INFRONT-3 trial of latozinemab for FTD-GRN.

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Quick Question September 2025 Result:

Life with FTD is about so much more than medical symptoms. To better understand the impact of FTD disorders, our September Quick Question asked …

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The Road Ahead: How Registry Data Can Drive Breakthroughs

The Road Ahead: How Registry Data Can Drive Breakthroughs

Progress is possible. See how Registry data can unlock breakthroughs in FTD research just as new treatments are showing progress in other neurological disorders.

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What Registry Data Tells Us About Genetic Testing

What Registry Data Tells Us About Genetic Testing

Only a fraction of people with FTD and their relatives pursue genetic testing. This World FTD Awareness Week, discover how genetic counseling can guide the way.

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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