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FTDDR Exceeded Enrollment Predictions on First Day!

More than 2,300 persons affected by frontotemporal degeneration, including more than 400 diagnosed persons, have enrolled in the FTD Disorders Registry (FTDDR) since the data collection tool...more >


FTDDR Celebrates 2 Years!

Guess who’s turning two? Yes, 2 years ago on March 28, 2017, the FTD Disorders Registry (FTDDR) was launched when our website went live and we began enrolling persons affected by the spectrum of...more >


AFTD Education Conference: May 3, 2019

Find Help. Share Hope. You are invited to the 2019 AFTD Education Conference on May 3, 2019, in Los Angeles. Come for a day of learning, sharing, and making connections with others in the FTD...more >


16th Annual CurePSP Awareness & Memorial Walk: March 9, 2019

The 16th Annual CurePSP Awareness & Memorial Walk, sponsored by the SW Florida...more >


Show Your Stripes on Rare Disease Day: Feb. 28, 2019

Thursday, February 28, 2019, is Rare Disease Day® in the United States. The main objective of this day,...more >