PRESS & NEWS

What Does FTD Research Need to Move Forward?

FTD research depends on participants, families, clinicians, researchers, data, and collaboration working together. Each plays a different role in helping move research forward.

Quick Question August 2026 Result:

In our August Quick Question, we asked Registry participants, “Have you experienced any safety concerns related to FTD in the past year?” A total of 516 people responded, offering a snapshot …

Understanding the Different Ways to Participate in FTD Research

There are many ways to participate in research. Learn the different options to choose what is best for you and your family.

A New Approach to PSP Research: Understanding the PSP Trial Platform

The PSP Trial Platform is using an innovative approach to study multiple potential treatments within one shared clinical trial framework. Learn how this new model could help advance PSP research and make clinical trials more efficient.

Who Has a Role in the FTD Disorders Registry?

The FTD Disorders Registry was created to share the many perspectives of the lived experience of FTD disorders.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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