Press

883 people answered the FTD Disorders Registry’s January Quick Question about their water sources.

55% have 2 or more people in the family diagnosed with FTD/related disorder.

Of the 818 respondents, most (698) were not burdened with persistent headaches.

November 15, 2023 : 3:00 – 4:00 p.m. ET

LEARN HOW RESEARCH GOES FROM THE LAB TO PATIENTS WITH DR. JENNIFER BRUMMET! Research is critical to finding treatments and cures for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). In this webinar, CurePSP’s Associate Director of Scientific Affairs and Partnerships, Jennifer Brummet, PhD, will discuss the ins and outs of…

Are you a current or former caregiver for someone with FTD?

During the 2023 World FTD Awareness Week, the Registry used communication channels to ask participants: 1 “What webinar content would you be most interested in?” 2 “What is/was the biggest hurdle you encountered while caring for your loved one at home?” The purpose of the questions was to demonstrate to the audience how they can…

Understanding the experiences of people living with Frontotemporal degeneration (FTD) disorders and those supporting them is essential to developing clinical tools and research studies that address the specific needs of this group. Launched in June 2022 by the FTD Disorders Registry (FTDDR), #FTDQuickQuestions serves to engage people in the FTD community in anonymous, real-time data…

“Have you ever served in the military?” The purpose of this quick question was to assess the military status of individuals diagnosed with FTD.