PRESS & NEWS

FTD Disorders Registry Research at CTAD 2025

FTD Disorders Registry Research at CTAD 2025

The FTD Disorders Registry was featured at CTAD in San Diego, where a poster presented by Dr. Shana Dodge highlighted how the Registry is helping accelerate clinical trial recruitment in frontotemporal degeneration.

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Quick Question November 2025 Result:

353 people responded, sharing insights on the physical challenges that can come with FTD.

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What We Learn From Every Drop: The Power of Biosamples in FTD

What We Learn From Every Drop: The Power of Biosamples in FTD

Every biosample holds valuable information that brings us closer to earlier diagnosis and effective treatments for FTD.

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Quick Question October 2025 Result:

About 33% reported that they are actively exploring care options …

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FTD Research Roundup: What’s New This Fall

FTD Research Roundup: What’s New This Fall

The Fall Research Roundup highlights new studies now enrolling people living with FTD, care partners, and biological family members.

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Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

Your privacy is important! We promise to protect it. We will not share your contact information.

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