PRESS & NEWS

What Happens at an FTD Research Conference?

What happens when the FTD research community comes together? See how conferences help researchers share findings, build collaborations, and keep the experiences of people impacted by FTD at the center of research.

New Research Highlights Communication Challenges Across the FTD Spectrum

A new study published in the American Journal of Speech-Language Pathology uses data from the AFTD Insights Survey to examine communication difficulties across the frontotemporal lobar degeneration (FTLD) spectrum.

Spotlight on World FTD Awareness Week

World FTD Awareness Week is September 28 – October 4, 2026.

Why Rare Disease Research Has a Recruitment Problem

When a disease is rare, finding enough people to participate in research can be one of the greatest challenges to developing new treatments.

What Does FTD Research Need to Move Forward?

FTD research depends on participants, families, clinicians, researchers, data, and collaboration working together. Each plays a different role in helping move research forward.

Together we can find a cure for ftd

The FTD Disorders Registry is a powerful tool in the movement to create therapies and find a cure. Together we can help change the course of the disease and put an end to FTD.

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