534 individuals responded, providing insight into how symptoms of FTD can sometimes intersect with law enforcement

Care partners play a vital role in helping researchers understand how the impact of FTD unfolds in daily life. Through their observations, experiences, and participation in the FTD Disorders Registry, care partners provide insights that shape future studies and ensure research reflects the real challenges families face.

CurePSP’s Louder Than Words program provides free voice banking and AI voice cloning tools for people living with PSP, CBD, and MSA, helping individuals preserve their voice and stay connected with loved ones even if speech becomes difficult.

FTD is a spectrum, not a single diagnosis. Recognizing the differences between subtypes helps researchers design smarter studies, accelerate discoveries, and move us closer to effective treatments.

Being counted is an act of hope, a way for individuals and families impacted by frontotemporal degeneration to turn their lived experience into momentum for research, visibility, and a future with better diagnosis, care, and treatments.